Home Forums The Hemochromatosis Community

You must be logged in to create new discussions.

Home Forums The Hemochromatosis Community

  • #77414

    Frankie
    Member

    Has anyone else noticed hair thinning or loss from HH?

    • #77416

      Anonymous
      Guest

      Yes! My hair was falling out like crazy before treatment.

      • #77418

        Frankie
        Member

        Did it stop once your iron went down?

        • #77420

          Anonymous
          Guest

          Mostly! I started taking collagen, and that helped too.

    • #77422

      Anonymous
      Guest

      I think iron affects thyroid function too, which can cause hair loss.

      • #77424

        Anonymous
        Guest

        Oh wow, that makes sense! I should get my thyroid checked.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #77402

    Anonymous
    Guest

    Does HH make your skin change color? My face has a weird bronze tint even though I’m not tanning!

    • #77404

      Anonymous
      Guest

      Yep! My hands and face got darker when my ferritin was over 800.

      • #77406

        Anonymous
        Guest

        Did it go away once your iron dropped?

        • #77408

          Anonymous
          Guest

          It took a while, but yes! My skin tone looks normal again.

    • #77410

      Anonymous
      Guest

      My knuckles turned kind of orange-ish. So weird!

      • #77412

        Anonymous
        Guest

        That happened to me too! I thought it was from carrots at first. 😂

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #77388

    Anonymous
    Guest

    My last phlebotomy left me feeling completely drained. Is this normal? How do you recover faster?

    • #77390

      Anonymous
      Guest

       Yes! I used to feel wiped out for days after a draw. Hydration is key!

      • #77392

        Anonymous
        Guest

        Do you drink electrolytes or just water?

        • #77394

          Anonymous
          Guest

          I use coconut water and salt—works better than sports drinks for me.

    • #77396

      Anonymous
      Guest

      Protein and iron-blocking foods helped me bounce back faster.

      • #77398

        Anonymous
        Guest

        Interesting! I usually crave salty snacks after a draw.

        • #77400

          Anonymous
          Guest

          Same! Probably because we lose some minerals too.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #77378

    Anonymous
    Guest

    Does anyone else feel like HH is affecting their eyesight? My vision seems blurrier on some days, but I don’t know if it’s related.

    • #77380

      Anonymous
      Guest

      Yes! My eyes feel dry, and sometimes I struggle to focus. I’ve wondered if it’s from oxidative stress.

      • #77382

        Anonymous
        Guest

        That makes sense. Have you found anything that helps?

        • #77384

          Anonymous
          Guest

          I started taking astaxanthin and lutein. It’s helped a little!

    • #77386

      Anonymous
      Guest

       I get floaters in my vision sometimes. My doctor said it could be from inflammation

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #73907

    Anonymous
    Guest

    Does anyone here struggle with nausea from iron overload? It’s been hitting me HARD lately.

    • #74043

      Anonymous
      Guest

      I had this! My doctor said high iron can irritate the stomach lining.

      • #74123

        Anonymous
        Guest

        That makes sense. Did anything help?

        • #74203

          Anonymous
          Guest

          Drinking ginger tea helped a lot!

    • #74281

      Anonymous
      Guest

      For me, cutting back on fatty foods made a difference. My digestion was awful before.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #73519

    Frankie
    Member

    What’s the strangest thing a doctor has told you about HH?

    • #73608

      Anonymous
      Guest

      Mine told me HH was ‘self-correcting’ and that I didn’t need treatment. Meanwhile, my ferritin was over 800.

      • #73705

        Frankie
        Member

        That’s insane. Did you switch doctors?

        • #73781

          Anonymous
          Guest

          Immediately!

    • #73856

      Anonymous
      Guest

      I was told I ‘probably just need more water’ when I complained about fatigue.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #73068

    Anonymous
    Guest

    My doctor says my iron levels are ‘fine’ but my joints still hurt. What actually helps with HH joint pain?

    • #73074

      Anonymous
      Guest

      Curcumin saved me! It blocks iron absorption and helps inflammation.

      • #73274

        Anonymous
        Guest

        I need to try that! Do you take it daily?

        • #73357

          Anonymous
          Guest

          Yep, 1000 mg with black pepper for absorption!

    • #73459

      Anonymous
      Guest

      For me, cutting out sugar made a HUGE difference in joint pain.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #72325

    Anonymous
    Guest

    Does anyone else get sudden, random dizziness? My iron levels are still high, but this is new for me.

    • #72431

      Anonymous
      Guest

      I get dizzy spells when my iron is high. I think it’s blood pressure-related?

      • #72653

        Anonymous
        Guest

        That’s what I was wondering. Did your doctor say anything about it?

        • #72862

          Anonymous
          Guest

          They told me to drink more water, but that didn’t fix it!

    • #72986

      Anonymous
      Guest

      I feel like my body just gets ‘off balance’ when my iron is up. Hard to explain!

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #71825

    Anonymous
    Guest

    Why does my body feel so inflamed all the time? My ferritin is coming down, but I still ache everywhere!

    • #71977

      Anonymous
      Guest

      Iron causes oxidative stress, so your body is still recovering.

      • #72101

        Anonymous
        Guest

        That makes sense. What helped you the most?

        • #72242

          Anonymous
          Guest

          Turmeric, green tea, and saunas!

    • #72661

      Frankie
      Member

      For me, castor oil packs and infrared light helped a ton.

  • You must be logged in to reply to this topic.

Home Forums The Hemochromatosis Community

  • #70366

    Anonymous
    Guest

    I just read that iron can mess with sleep by disrupting melatonin. Has anyone else noticed worse sleep with high iron?

    • #70536

      Anonymous
      Guest

      YES. My sleep was awful when my ferritin was over 500. Waking up at 3 AM for no reason!

      • #70798

        Anonymous
        Guest

        That’s exactly what’s happening to me!

        • #71138

          Anonymous
          Guest

          Once my ferritin dropped, I started sleeping normally again.

    • #71358

      Anonymous
      Guest

      I take magnesium glycinate before bed, and it helps calm everything down.

  • You must be logged in to reply to this topic.
x
Reply: