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Does anyone else feel like phlebotomy wipes them out? Why aren’t there recovery options?
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Why isn’t insurance covering phlebotomy for everyone? We don’t have a choice!
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How many of you had to demand an iron panel because your doctor refused to test it?
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We NEED a campaign to spread awareness. Why isn’t there a national push to educate people about HH?
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How many people were told their symptoms were ‘just aging’? Meanwhile, it was iron overload all along!
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Doctors told me ‘you’re just getting older’ when I was 35. Turns out, my ferritin was 900!
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Why does HH cause joint pain, but doctors act like it’s unrelated? We KNOW iron deposits in joints!
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Why don’t more doctors connect iron overload to mental health? Anxiety, depression, and brain fog are real symptoms!
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I was put on antidepressants before anyone checked my iron. Turns out, it was just HH messing with my brain.
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Why isn’t HH part of routine health screenings? We test cholesterol, blood sugar, thyroid—but not iron levels?!
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Why are some blood banks refusing HH patients? They tell us to donate, but then won’t take our blood. Make it make sense!
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Why do doctors act like HH is rare when 1 in 200 people have it? It’s more common than cystic fibrosis, yet no one talks about it!
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It’s not rare, it’s just rarely diagnosed. How many people are walking around undiagnosed?
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I had symptoms for 10+ years before they figured it out. How many others are suffering in silence?
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