You must be logged in to create new discussions.
-
-
That is a tough one, I hear you though. You do feel like you are not doing anything wrong…..At the time.
-
-
-
Frankie, sounds like you are treading on thin ice, I would be careful! LOL I actually try really hard to think before I speak, and think about how they are going to take my reaction. I will admit, sometimes it is impossible!
-
- You must be logged in to reply to this topic.
-
I just got my iron panel back, and my ferritin is 430. My doctor says I don’t need phlebotomy yet, but I feel exhausted, my joints hurt, and I can barely focus. Does this sound right to anyone?!
-
-
That sounds WRONG. Anything over 300 should be treated. If you feel bad, you need to push for it! 👍
-
-
-
Find a new doctor or demand a referral to a hematologist. You shouldn’t be dismissed like this!
-
-
-
-
- You must be logged in to reply to this topic.
- You must be logged in to reply to this topic.
-
First phlebotomy done! I also take methotrexate and Humira for arthritis, but I’m worried about my liver. My next rheumatologist appointment isn’t until April. Should I stop these meds?
-
-
That’s a tough call. Methotrexate & Humira can stress the liver, but stopping suddenly isn’t safe either. Talk to your doctor ASAP. 🏥 👍
-
-
-
- You must be logged in to reply to this topic.
- You must be logged in to reply to this topic.
- You must be logged in to reply to this topic.
-
-
I’ve been there. Have you looked into gut health? Your gut controls how much iron you absorb. 👍
-
-
-
- You must be logged in to reply to this topic.
-
I’ve had HH for years, and I swear by exercise and diet! 🏃♀️💪 It keeps me sane. If anyone needs motivation, I’m here!
-
-
-
I schedule my workouts AROUND my phlebotomy days. I do strength on non-draw days, and cardio on light days!
-
-
- You must be logged in to reply to this topic.
-
-
Doctors focus too much on ferritin alone. High TS% means your body is overloaded with circulating iron! You need another opinion. 🚨 👍
-
It’s about where the iron is. You could still be storing it in your organs even if ferritin is low.
-
-
Doctors love to look at only ferritin and ignore TS%. If it’s high, you could still be storing iron in your organs. 🛑
-
-
-
- You must be logged in to reply to this topic.
-
I don’t talk about this much, but HH has been messing with my mental health. The fatigue, brain fog, and frustration with doctors—it’s been a lot. 😞 Anyone else struggling with this?
-
-
-
Some days I feel fine, others I feel completely drained and irritable. It’s a rollercoaster. 🧠💥
-
-
-
Hang in there! Have you had your B12, folate, and omega-3 levels checked? They made a difference for me!
-
-
-
-
- You must be logged in to reply to this topic.