You must be logged in to create new discussions.
-
What’s the biggest myth you’ve heard about HH?
- You must be logged in to reply to this topic.
-
 I had my first phlebotomy yesterday and felt completely drained after. Does it always hit this hard?
- You must be logged in to reply to this topic.
-
Has anyone else noticed they bruise easily with HH? My arms and legs are covered in random bruises. Is this an iron thing?
- You must be logged in to reply to this topic.
-
What was your first HH symptom? I had extreme fatigue before anything else. What was yours?
- You must be logged in to reply to this topic.
-
Has anyone had weird skin changes from HH? My knuckles are dark, and my skin looks a little bronze. Is this normal?
- You must be logged in to reply to this topic.
-
How do you handle joint pain from HH? Some days, my hands feel like they don’t even work. Any tips?
- You must be logged in to reply to this topic.
-
I was told my fatigue was ‘just normal for my age.’ Turns out my ferritin was 900. How many of you were misdiagnosed before they finally checked your iron?
-
-
-
-
It’s scary how common this is. If they had tested earlier, we wouldn’t have suffered for years.
-
-
- You must be logged in to reply to this topic.
-
Does anyone else feel like they’re getting worse before they feel better? I’ve been doing phlebotomies for months, but I still feel exhausted and weak. How long did it take you to notice improvements?
- You must be logged in to reply to this topic.
-
I just got my latest bloodwork back, and my ferritin is 550. My doctor says I ‘don’t need phlebotomy yet’ even though I feel awful. Is this normal?!
- You must be logged in to reply to this topic.
-
Why aren’t more doctors recognizing the connection between HH and mental health? The anxiety, brain fog, and depression are real.
-
-
I was put on antidepressants instead of them checking my iron. Turns out, it was just HH messing with my brain. 🤯
-
-
-
- You must be logged in to reply to this topic.