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Has anyone else been told their blood is ‘too high in iron’ to donate? They tell us to donate, then reject us. MAKE IT MAKE SENSE.
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If phlebotomy is our only treatment, why isn’t it easier to access? Some people have to drive HOURS just to get it done. 😡
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Why are people with HH told diet doesn’t matter? If we’re absorbing too much iron, shouldn’t there be official diet guidelines?
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To major things to try, (1) The Binding Factor, did you look at the medical journals that back that up? I never heard of IP-6! Try the weekly custom meal plans. They have made it SO easy!
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I just looked at that, I ordered The Binding Factor! Now I am going to look at a custom meal plan. Are they done using A.I.?
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Yes they use A.I. I send Admin a question about it. They should post that. They have trained an AI bot specifically for HH. If you have other restrictions in your diet it can add that as well. I have a friend who has diabetes, uses it and loves it.
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Try the custom meal plans! I am now really getting into food prepping. It is making my life so much easier!
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I love them! It tells you exactly what to eat when. I was avoiding citrus fruits due to the Vitamin C, I had that all wrong. Timing!! Plus the motivational tips are great!
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Why is the medical system so reactive instead of proactive? They wait until iron destroys organs instead of catching it early. WHY?!
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If HH is the most common genetic disorder, WHY don’t doctors learn about it in med school? How many of us had to explain our own condition to a doctor? 🤦♀️
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How many of you were told your symptoms were ‘just aging’? Meanwhile, it was iron overload all along!
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They will come up with anything, we know our education in the USA is horrible, why would we think miraculously our Dr/’s would be any better?!
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That is a great point! We need to stop thinking they walk on water! How many times do they have to show us for us to just figure it out on our own!
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Why aren’t doctors talking about how HH affects mental health? Brain fog, anxiety, and depression are huge, but they act like it’s not related.
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I was put on antidepressants instead of them checking my iron. Turns out, it was just HH messing with my brain. 🤯
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How many people here were misdiagnosed before they finally checked your iron? What was your ‘wrong diagnosis’ before HH?
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Chronic fatigue syndrome, anxiety, depression, IBS… you name it, they tried diagnosing me with it first.
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If HH is genetic, why don’t doctors push for family screening? It should be automatic!
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Why do doctors say HH is ‘mild’ when untreated iron overload can destroy organs?
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