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Why isn’t there an HH awareness month that actually gets national attention? Other conditions get massive campaigns—why not us?
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If insurance covers gym memberships for diabetes, why doesn’t it cover sauna therapy for HH? Sweating helps lower iron too!
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Why aren’t doctors talking about the link between HH and mental health? The anxiety, brain fog, and depression are real!
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They gave me antidepressants instead of checking my iron. Turns out, it was just HH messing with my brain.
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We NEED a public awareness campaign. Other conditions get TV ads, billboards, and social media attention—why not HH?
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Writing an article isn’t just about venting—it’s about pushing for REAL change. If we don’t speak up, nothing happens. Who’s working on theirs?
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How many of us had doctors dismiss our symptoms for YEARS before finally checking iron? Drop the number of years you waited in the comments.
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They tell us to donate blood for treatment, but many blood banks won’t take it. So… what are we supposed to do?!
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Iron overload isn’t rare—undiagnosed HH is. If 1 in 200 people have it, that’s over 1.6 million in the U.S. alone! The fact that doctors STILL call this ‘rare’ is beyond frustrating. Who else was told HH is ‘not common enough’ for testing?
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They screen newborns for diseases that affect only a few thousand people, but not HH? The math isn’t adding up.
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I got feedback on my CBC W/Ferritin article! They suggested expanding on how much money early screening could save the healthcare system. I’m making edits now—who else is working on theirs?
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Mine is on how a Full Iron Panel should be mandatory. It’s ridiculous that they don’t test it when it could prevent so many illnesses. Did you have yours edited?
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What do you wish you knew earlier about HH?
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That just because your ferritin is low doesn’t mean you’re in the clear—transferrin saturation matters!
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