You must be logged in to create new discussions.
-
My doctor told me my joint pain has ‘nothing to do with iron overload.’ Meanwhile, I can barely grip things in the morning. Is this true?!
- You must be logged in to reply to this topic.
-
I’ve been doing phlebotomy for months, but I still feel weak and lightheaded. Does it ever get easier? What helped you recover faster?
- You must be logged in to reply to this topic.
-
I was just told my ferritin of 320 is ‘nothing to worry about.’ Meanwhile, I feel exhausted, my joints ache, and my skin is changing color. Is this normal?!
-
-
Ferritin over 300 should definitely be addressed! Doctors don’t realize how iron affects the whole body. 👍
-
-
-
- You must be logged in to reply to this topic.
-
What do you wish you had known earlier about HH?
- You must be logged in to reply to this topic.
-
What’s the worst advice a doctor has given you about HH?
- You must be logged in to reply to this topic.
-
Has anyone else been told that their ferritin is ‘normal’ even though they feel awful? Mine is 180, and my doctor says I don’t need treatment.
- You must be logged in to reply to this topic.
-
Why does no one talk about the brain fog that comes with HH? Some days, I feel like I can’t even think straight.
- You must be logged in to reply to this topic.
-
Has anyone noticed that their skin has changed since being diagnosed? My hands look darker, and I feel like my complexion is different.
- You must be logged in to reply to this topic.
-
Does anyone else get dizzy or lightheaded from HH? It’s happening more often lately, and I don’t know if it’s normal.
- You must be logged in to reply to this topic.
-
How many of you were misdiagnosed before they figured out it was HH? I went through five different doctors and three wrong diagnoses!
- You must be logged in to reply to this topic.