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My doctor told me HH doesn’t cause joint pain. Meanwhile, my hands and knees feel like I’m 80 years old. Is this true?!
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Anyone else feel like HH is robbing them of energy? I can sleep 9 hours and still wake up exhausted. What actually helped you?
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Just got my ferritin checked again, and it’s still over 400. My doctor told me to ‘just eat less red meat’ and wouldn’t order phlebotomy yet. Is this normal?!
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If insurance covers gym memberships for diabetes, why doesn’t it cover sauna therapy for HH? Sweating helps lower iron too!
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Doctors don’t seem to connect iron overload to mental health. I had anxiety and brain fog for YEARS before getting diagnosed. Anyone else?
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They put me on antidepressants instead of checking my iron. Turns out, it was just HH messing with my brain. 🤯
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Why is HH ignored when it leads to diabetes, heart disease, liver failure, and dementia? If it was anything else, we’d see awareness campaigns everywhere!
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How many of us had our HH symptoms dismissed because we ‘don’t look sick’? The exhaustion, joint pain, and brain fog are invisible, but that doesn’t make them any less real. 😡
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What’s stopping you from submitting an article? The more voices we have, the harder it is to ignore us. If you’ve been misdiagnosed, dismissed, or struggled to get the right tests, your story NEEDS to be heard!
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Awareness doesn’t just happen—it’s created. If we don’t push for HH to be taken seriously, who will? We can either wait for change or BE the change. Who’s ready to make some noise?
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I just submitted an article to push for CBC W/Ferritin on routine blood panels! I focused on how early testing is cheaper than treating HH complications later. If we want change, we have to fight for it! Who else is submitting?
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I wrote one on adding a Full Iron Panel! Did you know they test every baby for Maple Syrup Disease, which affects fewer than 5,000 people? But we can’t get ferritin on a CBC?
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I wrote mine on how ferritin testing isn’t just for HH—low ferritin is a huge red flag for anemia, too. Millions of people would benefit from it.
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I didn’t get mine accepted at first, but I had it professionally edited, and now it’s looking good!
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